Tuesday, July 31, 2012

Glass half full.

I find that quite often my morning walks are a time of quiet communion with my Lord.  This morning my thoughts centered on how many blessings He has poured out upon me.


Yes I have cancer.  And some might wonder how it is possible to dwell upon my many blessings when this unwelcome monster has invaded my body.  But that cancer is only a part of my existence - and it will be dealt with in due course.  There are so many other things in my life that are so much more wonderful and marvelous.  Last week we spent several days with our son, our daughter-in-law and 3 grandchildren at the beach in Charleston.  We came home Saturday only to be joined by our daughter and 3 grandchildren, and our son-in-law will join us mid week.  Family time together is one of our greatest blessings.  I am being treated for my cancer at one of the finest medical facilities in the United States, if not the world.  And considering the very lengthy list of possible side effects from chemotherapy, I am fortunate to have only lost what little hair I had, and I feel more fatigued than usual.  How blessed is that.  As I walked, my mind wandered through an almost endless list of physical possessions that surround me and make my life more comfortable and enjoyable.  And even more importantly, I have so many other less tangible blessings, including the love of my marvelous wife and my wonderful family, the comfort afforded me by living in the great U.S.A. (with all of it's imperfections), and the peace and joy of knowing my Lord and Savior Jesus Christ.

Whether I consider my glass half full or half empty is a choice that is mine to make.  And I choose half full.

Wednesday, July 25, 2012

Off to the beach.

Wednesdays are normally my chemo days, but since I have a 2 week break before starting a new cycle of treatments, this morning we headed out for Charleston.  Our son and his family rented a beach house on Isle of Palms and they are spending the week there.  They invited us to join them and who can pass up several days of sun, sand and fresh seafood.  I may pass on the sun and the sand since I am already fatigued and the heat just melts me like butter.  But I will make up for it in the seafood department.  There is nothing that beats the taste of shrimp or flounder or snapper that was just swimming around in the ocean 12 hours ago.  And since I love to cook, I will get twice the enjoyment out of whatever we have for dinner.  Our two granddaughters, 11 and 9, and our 4 y/o grandson will keep the days busy and the activity level high.  Lots of memories, lots of stories and lots of love.  It just doesn't get any better.

Monday, July 23, 2012

Optimistic outlook.

Battling cancer with an optimistic and upbeat attitude is a challenging task.  I would think that for most people having just been diagnosed with cancer, their initial reaction is probably not one of upbeat optimism.  I know mine wasn't.  As I have mentioned before, I have been doing a lot of reading, trying to gain strength and hope from the experience of others.  And I have found an amazing number of stories, from people just like you and me, who steadfastly refuse to just lay down and die.  Rather, they dig down deep, and muster an inner strength and determination that propels them ever onward and upward.  I read about a woman named Nancy, who has battled cancer in various forms, for over 20 years, starting at age 39.  She says ".. I have had over 14 types of chemotherapy or hormone therapy, 12 surgical procedures, 12 weeks of radiation therapy, and more bone scans, MRI's, PET scans and other scans than I could count."  She also says "We never know how much courage and strength we have until we are put to the test."  And finally "You are unique, and how you face challenges in life and respond to those challenges is unique to you.  You are not a statistic!  I have always taken on the approach that if statistics say there is a one in 100 chance for survival, the other 99 might as well move over, because I am heading for the winning position at the finish line."  Nancy's inspirational story should challenge us all.

Then there is Ethan, a 38 year old who has already battled Hodgkin's Lymphoma twice.  In addition to chemotherapy, he has had 2 different bone marrow transplants, one using his own cells and the other from a donor.  Amazingly, part way through his second series of treatments, Ethan ran in the Disney half-marathon.  Not that I have started training to compete in any road races, but Ethan's spirit of drive and determination has been motivational for me.  He is quoted as saying "I want to debunk the perception that there are winners and losers with cancer - you either win and you beat it or you lose and you die.  The reality is that there's an in between.  There are plenty of people like me who learn that there are drugs that will keep you alive longer.  I realize that I can live with cancer - and still call myself a winner and a survivor."

Recent medical advances in the treatment of cancer are numerous, and many more lie just ahead.  Monoclonal antibodies are one exciting new approach that allows the targeting of specific cancer cells, rather than the more generalized and destructive nature of chemotherapy.  Each year brings new and better ways to treat and potentially cure cancer.  And it may not be that long before they find a way to more effectively treat and cure my rare and aggressive form of the disease.  The current treatments may be able to cure my Lymphoma, and that is our fervent prayer.  But if not, there is definitely hope on the horizon.

I am optimistic that one day I will again be cancer free.  Between the diligent work of medical professionals, and the power of prayer to my Almighty God, I am confident that better days lie ahead.  The path that I walk today is not one that I welcome, but it is what it is.  My life may be somewhat harder, but it will keep going.  My faith has been strengthened in the past when I encountered difficulties and trials, and I have no doubt it will grow stronger in the days ahead as I learn to cast my burdens upon Him.  So I will take things one day at a time, knowing in my heart that we're going to beat this.  Anything less simply isn't an option.

Friday, July 20, 2012

Quote for the day.

A book I am reading contains the following statement, which I wanted to share:

"No one gets the luxury of selecting life's problems, but how you deal with them makes all the difference."

Thursday, July 19, 2012

Digging down deep.

Yesterday I had my last treatment (Pralatrexate) which completed my 1st cycle of chemotherapy.  I was diagnosed on June 6 and in some ways that seems so long ago and yet in others it seems like just yesterday.  Much has happened in that 6 1/2 week period.  Locating doctors, enrolling in clinical trials, starting chemo treatments, trying to digest and understand a whole new world of medical terminology and procedures, attempting to comprehend the implications of having a rare and aggressive form of cancer, and discerning it's likely impact on the coming months and years.  Add to that the emotional struggles of trying to come to terms with various possibly life-changing outcomes, and you have what can safely be termed a very stressful situation.  Fortunately we are surrounded by a tremendous support group of family, friends and first class medical care personnel.  The phone calls, cards and letters and expressions of support and caring have meant so much.  And last, but by no means least, is our faith in  a loving and all powerful God Almighty.  Without that faith, I know that all of the rest would not have been sufficient to meet our needs.  Our journey has just begun, and there is a long and winding road that lies ahead, but we have every confidence that we will be able to navigate the bumps and turns along the way.  Remember, our family motto is: We're going to beat this!

If you are ever feeling down, or feeling that life has taken a recent turn for the worse, just go spend a couple of hours sitting in the waiting area outside a chemotherapy treatment center.  It won't take long for you to see that things could be a lot worse, a whole lot worse.  There I sit looking more like someone who is waiting to pickup a patient, rather than someone who is an actual patient waiting for treatment.  Look around and some of the people just make your heart cry out.  For some of them it took every ounce of strength they had just to get there.  But then you think about the courage that surrounds you.  These people have been through so much, so much pain and suffering, so much heartache and turmoil, and yet they keep coming back.  Their return may be based on sheer will and determination to not let this monster win.  Or it may be based on the fact that the alternative is so much worse.  But however they find it, they dig down deep and muster enough courage to fight through another day.  

Some of them will not win their battle.  But many will.  Six months, or a year from now, they may well look and act just as normal as ever.  Their outside appearance will not distinguish them from all of the others around them.  But inside they will never be the same.  They will remember the difficult times, the fear and the sorrow.  Then they will remember that they fought a great fight and they won.  They are cancer survivors.  Their view of life will never be quite the same.  Twelve years ago I fought a battle with Lymphoma and I won.  That fight and that victory will forever be part of me.  By no choice of my own, I am now in another fight with a different form of Lymphoma.  And just like I did before, I will dig down deep and muster enough courage to fight through another day.  Because once again, we're going to beat this!

Tuesday, July 17, 2012

Home sweet home.

We got back yesterday from the visit with our daughter and her family.  It was a very enjoyable visit and gave us lots of things to occupy our minds.  Four days in the western Carolina mountains were a welcome respite from the grueling heat wave that has gripped most of the rest of the southeast lately.  But as we arrived back home we thought of the young girl from Kansas saying "There's no place like home".  I have another chemo treatment tomorrow and then, in the middle of next week, we are heading to the beach at Charleston SC, where our son and his family have rented a beach house.  Don't know that I will be spending much time on the beach itself, but having more time with family and eating lots of fresh seafood will no doubt provide plenty of fun and memories.  Not a bad schedule for someone in their 2nd month of chemotherapy treatments.  I am still feeling just fine, although I must admit to feeling a bit more fatigued lately and I do have a few sores in my mouth from the new Pralatrexate drug treatment, although nothing bad.  Things could certainly be far far worst and I praise the Lord for allowing me to stay as healthy and active as I am.

As I mentioned I have another treatment tomorrow and that will complete all of the treatments (6 in total) for the 1st cycle.  I will have a 2 week break and then I start a 2nd cycle during the first week in August.  After completing the 2nd cycle in mid September, I will have a series of tests to assess my progress, and then most likely begin the 3rd cycle of treatments.  That assessment will be key in telling us how well the treatments are impacting the Lymphoma.  At the present time only God himself knows how we are doing.  But since I put my trust in Him, I feel that my progress is in good hands.  In the meantime we are taking it one day at a time and today is going quite well thus far.

Thursday, July 12, 2012

Change of scenery.

Yesterday was another trip back to Duke, hopeful that my white blood cell count was back close to normal so I could get another treatment.  The blood test results indicated that the Neupogen shot I got last week to help boost my count was very succesful and my count was well into the normal range.  That was good news so the next chemo treament could proceed as scheduled (obviously I have a very distorted view of what constitutes "good news").  This is my first time for this new drug called Pralatrexate, which is  fairly new, and targeted primarliy at T-Cell Lymphoma.  My normal treatment with this drug is once per week for 3 weeks, although I missed last week because of my low white cell count.  As I have mentioned before, the primary side effect is mouth sores, which normally appear in about 7 to 10 days after treatment, so good oral care and lots of prayers between now and then are definitely in order.  Everything went smoothly with the treatement except that they "lost" my drugs for about an hour, but the search party finally arrived with IV bag in hand.

After leaving Duke we headed 4 hours west to visit our daughter and her family for a few days.  As I have said in an earlier post, my cancer will not be allowed to rule my life.  So even though yeterday was my first time for that drug, and I am not totally sure that I won't have a bad reaction, we are planning 3 or 4 days with family.  The safe bet would have been to return home, but then we would miss the excitement and wonder seen in the eyes of a 5 year old and 2 year old, and the joy of holding a 3 month old.  Now that is what life is all about.  And we will grab every opportunity to take advantage of the beauty and joy the Lord has given us.  Besides that, our son-in-law has promised to slow cook several racks of ribs on the grill, and the boy knows how to cook ribs.