Wednesday, January 22, 2014

How quickly things can change.

We were fortunate enough to be able to spend the holidays with our families; Christmas with our daughter Jill and New Years with our son Adam.  We returned home a few days into 2014 and I was having problems with a sore back.  So I had an MRI done to see if we could determine the cause, and we were very surprised to find a 2" tumor on my spine in the L3/L4 region.

In a quick series of tests and diagnostic sessions, it has been determined that my cancer has returned and I have already started radiation therapy to treat the tumor area.  The final biopsy results are not yet available, but we already know it is cancer, the question now is what specific type.  A PET scan showed new areas of activity, although they appear to be small in number and size (except for the tumor).

We are scheduled for an early February appointment with Dr Beaven at Duke to discuss longer range options.  My guess is that when we finish the radiation in two weeks, and the tumor has been destroyed or largely resolved, we will begin some type of systemic chemotherapy treatment at Duke as part of a clinical trial.  That will be the focus of our discussions in early February.

Last summer and fall, after followup visits and tests at Duke, I was determined to be in complete remission and cancer free.  By the end of 2013 it had returned, which is an example of how aggressive and nasty, Non Hodgkins Peripheral T-Cell Lymphoma can be.  Everything about it is mean.  I would be lying if I said I was not disappointed to hear it was back.  But I was also well aware that recurrence was a definite possibility.  My first experience with NHPTCL resulted in a hard fought and victorious outcome.  But it has now returned for round two, and I fully expect to achieve another victory.  I am prepared to do battle with this monster as often as necessary, until a cure is finally found and NHPTCL is an extinct disease.

Much information is still to be collected and analyzed, so we will be making numerous trips to Duke in the coming weeks and months.  Please keep us in your prayers and we promise to keep you posted on our progress.  Those of you who followed our earlier experience with NHPTCL know that we place our total trust and faith in the Lord God Almighty.  And His loving faithfulness during our earlier struggles have only strengthened our belief that He will be with us during our upcoming time of need.

2 comments:

  1. Jim and Holly, we are standing with you in prayer. May you be surrounded by God's "peace that passeth understanding" and His divine wisdom. With love, Jim and Judy Leach

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  2. I am so sorry to hear about your relapse . . . but as you said, Christ is with you, behind and before. I pray for wisdom for your medical team and I pray for you and your family as you gear up for the next phase.
    Cyndi Heath
    http://advocateofhope.wordpress.com

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